These Are A Few of My Favorite Things
June 28, 2016
Today’s Favorite Things shares our game changer for eating at the hospital using a cool app called “Order Up”! … More These Are A Few of My Favorite Things
Tag: Cystic Fibrosis
Feeling All the Feels
June 20, 2016
Hello friends … it has been awhile. Last time I wrote it was from the hospital walls of Hopkins and since then a lot has happened. First and foremost, our largest blessing: Danny is home, the Baltimore stay wrapped up nicely, and he has been able to be back here since last Wednesday on home … More Feeling All the Feels
Weekend That’s A Wrap
May 10, 2016
Hello folks and happy Tuesday! If you follow us on social media then you know we are coming off one hell of a week! Starting on Monday at 6:30AM, I arrived at the airport and it felt like from that moment on I was running the meeting dash! Off to Orlando I went with my … More Weekend That’s A Wrap
Weekend – That’s A Wrap!
April 20, 2016
Happy Wednesday friends! Hope your week is moving along swimmingly! Being in the midst of conference season at work and going back and forth to Baltimore over the last two weeks – we are living life in the fast lane for sure! But with the official return of the beautiful spring weather – we are … More Weekend – That’s A Wrap!
Serendipity of Life
April 18, 2016
Last month we talked a lot about SUPERDANCE and it got me thinking about the serendipitous power of life. At this year’s assembly as I sat amongst the audience hearing the words people would speak, feeling their personal experience, and learning what CF has represented in their lives – the many moments that have led to … More Serendipity of Life
What’s Up Doc – Dan Health Check-In
March 18, 2016
Hey ya’ll – its Thursday! Wahoo! Weekend is getting so close we can taste it!! Tonight’s post has been on my list for a few weeks and for some reason I have just been avoiding it. We don’t really have any specific news or changes to report, but still there is something that I always … More What’s Up Doc – Dan Health Check-In
Weekend – That’s A Wrap x 2
March 14, 2016
Hello friends!! Happy Monday! Well birthday week become really full with a lot of fun….. so sorry for the radio silence, we were out enjoying life!! Which means we have a 2 weekend wrap ups to complete and LOTS of pictures…. so get ready….away we go! Last weekend we had a completely unexpected surprise … More Weekend – That’s A Wrap x 2
SUPERDANCE 2016
March 7, 2016
Happy Sunday everyone! I am a little sad that I am just now finding myself back here, almost a week later, but silver lining for a week taking an unexpected turn? It included Danny coming home on Friday!! That’s right – our positive outlook, plans to be ready for a long term stay, flexibility all … More SUPERDANCE 2016
Weekend – That’s A Wrap!
March 1, 2016
Happy March folks! It is officially…… birthday month!! And just so you know – for a lot of my favorite people too, so this is not completely selfish 🙂 Before we get all into birthday mode though, we got a big ole to do to get off the list – it is tune-up time! … More Weekend – That’s A Wrap!
Kidney Blasting
December 17, 2015
Yesterday was Danny’s kidney stone surgery. As you may recall, he has a kidney stone that is rather sizable – but not causing any issues, so we have just let it be. However over the recent hospital stay they found it has grown and wanted it out…. So yesterday we blasted it. I am happy … More Kidney Blasting
Have A Little Faith in We 