It is human nature to wonder if you will live your life to the fullest. Do we choose the right passions? Surround ourselves with the right people? Select the correct career? Spend our most valuable resources: time, money and energy on the right things? Will we leave the world better than we found it? Claire … More Rest in Peace Claire Wineland
On August 15 we had the privilege of participating in the CF Mini-Con for Transplant. It was a virtual event that allowed CF patients and their families and/or support team to learn more about the different stages of transplant through the eyes of those who have experienced it. The reason this event felt so unique … More 2018 CF MiniCon: Transplant Follow-Up
This weekend we were invited to share our story at the Children Organ Transplant Association (COTA) Miracle Maker Event. COTA is the the not for profit organization we worked with for Danny’s transplant fund. They are amazing and will be getting their own post, but the most important thing to know is they have changed … More CF Does Define Us & We Are Blessed
13 Years and the fun still hasn’t run out…. Today we celebrate 13 Years of dating and if you have been around here before you may recognize this phrase…. the summer of 2005 Danny and I grabbed lunch while I was home from college. We had a good time, but I didn’t think it was … More 13 Years and the Fun Hasn’t Run Out
Believe it or not when preparing for transplant one of the biggest things we worried about was the amount of help we would need. Help during the wait, help during the surgery, help during recovery…. food, laundry, housing, finances, the dog, travel, taking care of our house, paying our bills, covering work loss- the list … More Fall Celebration
Recently I was in the midst of a decision and was thrown off by someone’s response. You know the type of input “Oh – that’s what your gonna do?” “Oh – that’s what you are gonna wear?” “Oh – that’s your final plan?”. The decision isn’t even something that comes to mind now. It was … More Doing Hard Things …. Despite What They Say
This blog was created to capture our lives and the transplant is one of the biggest aspects to date. While going through the experience I blogged about updates, emergencies, and the emotional toll it takes. But the story itself was something I have not revisited as often as I would like …. well and life … More The Drive to Transplant
There have been quite a few moments I took to my keyboard feeling a lot of painful and ugly things. If I am being honest writing wasn’t just cathartic or about documenting our lives. I am grateful for those benefits – but they weren’t the true momentum pushing me forward. I sat at my computer … More Today was a Good Day
Hey friends! With a new year and following a bit of an extended break, I am coming back to the blog with lots of new energy, new ideas …. really a new “why”. Why am I here… why do I like to do this….why do I focus on capturing particular things? So today I am … More Have a Little Faith in We
Hey friends! Thanks for your patience and space while we recovered from last weeks adventures. One of the biggest things 2017 has brought to my life is the importance of grace for time and healing. Going back down the hospital road has some physical, emotional, and mental consequences and I opted to let quiet surround … More A Bump in the Road or Lung….
