The biggest worry I have heard from the Cystic Fibrosis Community around the movie Five Fee Apart is a misrepresentation of CF life. If we are all being honest, there is no way one movie can portray all the different versions or complexities of this serious illness. That was always Danny and I’s perspective: just … More Five Feet Apart – The Movie
Happy Wednesday friends! Over here in our kneck of the woods things are a little all over the place and if I am being honest limbo stages like this can make my a-type feel a little unhinged. But this season of limbo is necessary to help move us into the future…. So instead of constantly … More Progress Over Perfection
“For you are dust and to dust you shall return” these are the words uttered to each person of the congregation as they receive their ashes upon their fore heads. A visible sign that we are broken humans who rely on God’s grace to make us whole. Over the last month I read Lysa … More Lent 2019
Yesterday I had the opportunity to speak at VCU’s CF Family Education Day and it was kind of a crazy experience for Danny and I. In the fall I was asked about doing this event. March seemed so far away but for the first time in our lives we were actually making long term plans … More CF Life & We are Back….. Sigh
Hey there friends, hope you are enjoying a great Saturday! Today I will be at the CF Family Education Day at the VCU’s Children’s Hospital in Richmond, Virginia sharing our story. If you are interested in attending the event or hearing my presentation at 2:05 this afternoon, please use this link to join the event … More CF Family Education Day at VCU Children’s Hospital
One of my favorite things about being a blog follower is how the experience goes from just following along to eventually feeling like you are taking advice from a friend. As a result of my love for blogs, I have purchased clothes, tried hair styles, decorated mantles, read books, organized my office, discovered health tricks, and … More These are a Few of My Favorite Things: AM Quiet Time
Hey friends! So if you have been following along with us this week you know Danny had his surgery Monday, it is going well, and we are doing our best to live in HOPE by continuing to move life forward, despite this pretty big bump in the road. As Danny and I drove to Baltimore … More Children’s Organ Transplant Association
Hey guys and happy Monday! We are at Hopkins and Danny is preparing for the procedure. This post was supposed to go live this weekend….. but my bladder has decided with each medical need for Danny it wants a little attention too and I wound up with the start of another infection this weekend. My … More Getting Dan Some Lung Function
Since yesterday was a snow day, it felt like a good time to get a few of my holiday posts form 2018 live! Starting with our new family tradition with the Heppes grandkiddos: Day at the Gaylord for ICE! The Gaylord hotels located all over the country get all decked out for the Christmas season … More Gaylord ICE! 2018
Last year at this time I was in a Daring Way Coaching Session with Jeanette Engle . It was one of the best things I have ever done and if you are local I would really recommend you check it out. One of the phrases we used a lot was that life is “brutaful”- brutal and … More Life is Brutaful
