The Call

It was Wednesday November 30 and Danny and I were preparing for our monthly Hopkins check-in. This would be the first appointment we would attend officially listed (Side note: we thought officially listed….since Dan had said he agreed to list Monday, November 28 we were pretty sure he was on there – but no one … More The Call

Life is Sweet

Over the last few months – and really years – I have used this blog as a place to share my fears, release my frustrations, and explain our experience. So now it is only fair to celebrate the incredible joy that has found its way to our home. … More Life is Sweet

Life Lately

Happy Tuesday friends! Is everyone enjoying the sum sum summertime?? We are LOVING it – especially since it feels a little cooler than normal for Northern VA in June, like an extedned spring…ahhhh PERFECTION! Today I am sharing a little life lately and how we are soaking up the season. We really started thinking about … More Life Lately

Danny Health Check-In

We have not had a health check-in for Danny in quite a bit, so after last week’s BIG appointment, it is time…. Danny’s Progress: Danny is officially on the mend. We have talked about the progress he has made and of course been encouraged before…. but nothing like this folks! Danny’s lungs are at 105%, … More Danny Health Check-In

Listing Day

On Monday November 28, 2016 Danny listed for a double lung transplant with Johns Hopkins Pulmonary Program. In many ways it felt like this was the beginning of the journey, but the reality was we had already been walking for awhile. Transplant first officially came up as an option that Danny would be preparing for in January 2010, … More Listing Day