2018 was the year of intense change. Everything in my world changed, completely out of the unexpected and I learned the true meaning of “what does not kill you makes you stronger”. Today’s post I share with you all some of the truth of this year and what is really on my heart this New Year’s Eve. … More 2018
Merry Christmas Eve all! In so many ways I have thought about the recent holiday season as just a day. Thanksgiving was just a dinner we missed, it helps to make us feel like CF hasn’t stolen something us from us. And truly when you start to look around there are so many people struggling … More What’s Going on Danny Boy?
The CF Community has lost one of its most vibrant members and reminded us of the evils that exist with the disease. Our thanks to Lea’s legacy of hope on the blog and why this loss has been so jarring. … More Rest in Peace Lea Faraone
Hey there friends! Well Christmas is in full swing and we are really doing are best to experience the beauty of it this year instead of the oh so familiar panic mode of too much to do and too little time. So today I am sharing one of my favorite Christmas memories from 2017…. If … More Old Town Alexandria at Christmas
One of my favorite things about being a blog follower is how the experience goes from just following along to eventually feeling like you are taking advice from a friend. As a result of my love for blogs, I have purchased clothes, tried hair styles, decorated mantles, read books, organized my office, discovered health tricks, and … More These are A Few of My favorite Things – Emily Ley Planner
Hi friends – HAPPY ADVENT! Yes, I know a few days late….. which is sorta my thing – but certainly made worse with the combo of hospital life followed immediately by a crazy work week…. all in all – it’s late, but only by 4 days so we are ROLLING WITH IT! Something about Advent … More Advent 2018
December 1, 2018: on that day two years ago I walked into an ICU room to see Danny after surgery. Later that same day I would walk into that ICU room to see Danny sitting in a chair breathing on his own. We were gifted a chance at life …. at that time we had … More Transplant 2 Years Later