Happy Monday friends! I hope the start of the week met you with the feeling of excitement after a nice weekend. We had an unexpectedly full week last week that most of this weekend was spent in recovery mode. Friday I ended up working a little late – but eventually made it home to a … More Weekend – That’s A Wrap
When you list for a double lung transplant,you are required to remain within a specific set of miles and hours from the hospital. The lungs can come at any time, from a variety of circumstances and the hospital team, the patient, and the family must be ready to go whenever they get that call- sound … More Look Whoos At UVA
Hey friends! Thanks for your continued prayers and kind words! Today already had a scheduled blog post, but as you may have seen on social media we have had some excitement with Danny, so I first wanted to give an update on our status. Blood sugars and GI trouble have been a common challenge … More ER…Ambulance…. Hospital Oh my!!!
So many of you have started following our blog as a way to watch as our transplant story unfolds. This has been such a helpful tool to share updates, document our journey, and for me to process my emotions around the experience. Since November 30 our life has been in survivial mode: getting through the surgery, struggling through our growing pains, managing the administrative side (new lungs aren’t free), while reacting to the unexpected. As a result our blog has been a narrative of our story and often where you find us right in this moment. However that is not the sole purpose I write. … More This is My Blog
Wednesday’s have now become Danny’s standard check-in days at Hopkins. Each week we go to meet with the transplant team, catch up with necessary specialists, review his medications, and get a report of what to expect at each stage of healing. Following these appointments, I will share an update of Danny’s progress, what we have learned, and any changes on recovery here on the blog. … More Wednesday’s at Hopkins
Well that is all she wrote folks…. Dan is out! Monday was his final day at Hopkins and he was released in the early afternoon. We were awaiting to see how his stomach faired with some food, followed by what the blood sugars had to say. Luckily they both turned out stable enough home it … More Hopkins – Remix Day 8 & Wednesday Updates
Well we had hoped for an exit today…. the official week mark, but no cigar! Danny is still not eating real meals that test his body’s ability to move food through – plus blood sugars are wacky – so he has secured himself another spot in the hospital. Luckily Santa paid a delayed visit to … More Hopkins Remix – Day 7
Hey there all! Hopefully you saw the good news on social media yesterday…. the blockage is out. Throughout Friday night it seems the Go Lightly did its thing and in the morning Danny requested another X-ray to see the status = all clear! So Saturday was spent letting the Go Lightly wrap up its handy … More Hopkins Remix – Day 6
Today’s report is pretty similar to yesterday …. with the addition of Go Lightly. We approached the morning start time of 10:30 with Go Lightly, Gatorade, ice, warm blankets, our walking shoes and some big cups of coffee! We were ready to knock this blockage OUT. But we did not… it has budged a little … More Hopkins Remix – Day 5
Good evening friends! Today’s health report for Danny is pretty straightforward – we have 1/4 of the blockage that still remains. This portion is located in the smaller intestine and will require the yummy cocktail (yea, right – not even close) of Go-Lightly to remove it. The original plan was to have Danny drink that … More Hopkins Remix – Day 4
Have A Little Faith in We 