As pre-op wrapped up LINK, it was time for the moment I had been wondering about since we even breathed the word transplant: our pre-surgery goodbye. First Danny’s parents had their time. I stood out in the hall trying to remain calm and talk to my parents. Keyword would be trying as I wavered between … More Unexpected Goodbye
Its not always life versus death. Sure there are moments that are fueled by the reality that life is so very short and that death has never been that far off base in our world. But it is more often the feeling that life as it is now or even just regular life never felt … More Indianapolis Summer Visit
Hey guys, today I am returning to a moment of our transplant journey: the pre-op room. After the call from the OR team wondering where the heck we were, Danny and I raced through the parking deck to our car. At the time I was attempting to give directions to his parents, since they happened … More Transplant Pre-Op Room
It is human nature to wonder if you will live your life to the fullest. Do we choose the right passions? Surround ourselves with the right people? Select the correct career? Spend our most valuable resources: time, money and energy on the right things? Will we leave the world better than we found it? Claire … More Rest in Peace Claire Wineland
On August 15 we had the privilege of participating in the CF Mini-Con for Transplant. It was a virtual event that allowed CF patients and their families and/or support team to learn more about the different stages of transplant through the eyes of those who have experienced it. The reason this event felt so unique … More 2018 CF MiniCon: Transplant Follow-Up
Hey gang! As you all know I have been trying to write our transplant story for awhile….. my last official story post was in April about the drive. For awhile I have beaten myself up about not getting it written down, but here is the deal – it is emotional and I really needed to … More Waiting for Call #2
This weekend we were invited to share our story at the Children Organ Transplant Association (COTA) Miracle Maker Event. COTA is the the not for profit organization we worked with for Danny’s transplant fund. They are amazing and will be getting their own post, but the most important thing to know is they have changed … More CF Does Define Us & We Are Blessed
13 Years and the fun still hasn’t run out…. Today we celebrate 13 Years of dating and if you have been around here before you may recognize this phrase…. the summer of 2005 Danny and I grabbed lunch while I was home from college. We had a good time, but I didn’t think it was … More 13 Years and the Fun Hasn’t Run Out
Believe it or not when preparing for transplant one of the biggest things we worried about was the amount of help we would need. Help during the wait, help during the surgery, help during recovery…. food, laundry, housing, finances, the dog, travel, taking care of our house, paying our bills, covering work loss- the list … More Fall Celebration
Recently I was in the midst of a decision and was thrown off by someone’s response. You know the type of input “Oh – that’s what your gonna do?” “Oh – that’s what you are gonna wear?” “Oh – that’s your final plan?”. The decision isn’t even something that comes to mind now. It was … More Doing Hard Things …. Despite What They Say
