How #2 Ended Up #1

During my last retell of the transplant journey we had just received our transplant call. There was a lot to digest from that one little call and amazing how many things were set into motion, but there is a piece of the story that sorta gets overshadowed because of the outcome, we were call #2. … More How #2 Ended Up #1

Life Lately

This post has been sitting in my drafts folder for over a week. I just about wrapped it up before we left town – but figured I would stop to pack and finish it when we were on the road. There is always down time and I can make the best of it. In fact, … More Life Lately

The Call

It was Wednesday November 30 and Danny and I were preparing for our monthly Hopkins check-in. This would be the first appointment we would attend officially listed (Side note: we thought officially listed….since Dan had said he agreed to list Monday, November 28 we were pretty sure he was on there – but no one … More The Call

Life is Sweet

Over the last few months – and really years – I have used this blog as a place to share my fears, release my frustrations, and explain our experience. So now it is only fair to celebrate the incredible joy that has found its way to our home. … More Life is Sweet

Life Lately

Happy Tuesday friends! Is everyone enjoying the sum sum summertime?? We are LOVING it – especially since it feels a little cooler than normal for Northern VA in June, like an extedned spring…ahhhh PERFECTION! Today I am sharing a little life lately and how we are soaking up the season. We really started thinking about … More Life Lately

Danny Health Check-In

We have not had a health check-in for Danny in quite a bit, so after last week’s BIG appointment, it is time…. Danny’s Progress: Danny is officially on the mend. We have talked about the progress he has made and of course been encouraged before…. but nothing like this folks! Danny’s lungs are at 105%, … More Danny Health Check-In

Listing Day

On Monday November 28, 2016 Danny listed for a double lung transplant with Johns Hopkins Pulmonary Program. In many ways it felt like this was the beginning of the journey, but the reality was we had already been walking for awhile. Transplant first officially came up as an option that Danny would be preparing for in January 2010, … More Listing Day

Thanksgiving 2016

Thanksgiving was our last holiday before listing and ultimately new lungs. We looked at this event as a chance to practice our new way of life: slow and easy. Danny and I both have family in the area so it is not uncommon for us to do our best to spend time with each family on … More Thanksgiving 2016