Merry Christmas Eve all! In so many ways I have thought about the recent holiday season as just a day. Thanksgiving was just a dinner we missed, it helps to make us feel like CF hasn’t stolen something us from us. And truly when you start to look around there are so many people struggling … More What’s Going on Danny Boy?
The CF Community has lost one of its most vibrant members and reminded us of the evils that exist with the disease. Our thanks to Lea’s legacy of hope on the blog and why this loss has been so jarring. … More Rest in Peace Lea Faraone
December 1, 2018: on that day two years ago I walked into an ICU room to see Danny after surgery. Later that same day I would walk into that ICU room to see Danny sitting in a chair breathing on his own. We were gifted a chance at life …. at that time we had … More Transplant 2 Years Later
Hey friends and happy Giving Tuesday!! It has been a fun few days with Black Friday, Small Business Saturday and Cyber Monday. Just like everyone else I am really enjoying following along with my favorite bloggers for their fun gift guides, exciting sale announcements and the promise of getting you all ready for the Christmas … More Giving Tuesday Could Change A Life
Hi guys! Happy Sunday. Popping on to give a little status update and since it is late and the outline format helped me be clear during the last post – I am going for it again. Reminder of the ultimate goal: If you looked at our post from in the hospital you can read … More The Plan….. for Now
Hi friends – hopping on here to give a little update of what is happening in our world…. if you follow us on social media then you know our Thanksgiving plans of celebrating the holiday with the Bessette side of the family and then heading Friday first thing to Pittsburg for a hockey tournament with … More Hopkins Happenings
In 2016 and 2017 therapy became a full time hobby. When I wasn’t doing the things I needed to keep the life we had cobbled together on life support (trying to maintain my job, work a second job, conducting creative accounting between incomes and our charity fund, trying to understand our reality so we could … More Supposed & Should are the other S Words
So I have had this post ready to go for a week. I was dragging my feet about posting it …. I think because I wanted to be able to report that everything had turned around. This was just a visit into bad memories and we were back on the up and up. Sadly that … More Can you reject just a little bit?
As pre-op wrapped up, it was time for the moment I had been wondering about since we even breathed the word transplant: our pre-surgery goodbye. First Danny’s parents had their time. I stood out in the hall trying to remain calm and talk to my parents. Keyword would be trying as I wavered between emotional … More Unexpected Goodbye
Its not always life versus death. Sure there are moments that are fueled by the reality that life is so very short and that death has never been that far off base in our world. But it is more often the feeling that life as it is now or even just regular life never felt … More Indianapolis Summer Visit