Hey there friends, hope you are enjoying a great Saturday! Today I will be at the CF Family Education Day at the VCU’s Children’s Hospital in Richmond, Virginia sharing our story. If you are interested in attending the event or hearing my presentation at 2:05 this afternoon, please use this link to join the event … More CF Family Education Day at VCU Children’s Hospital
Hey friends! So if you have been following along with us this week you know Danny had his surgery Monday, it is going well, and we are doing our best to live in HOPE by continuing to move life forward, despite this pretty big bump in the road. As Danny and I drove to Baltimore … More Children’s Organ Transplant Association
Hey guys and happy Monday! We are at Hopkins and Danny is preparing for the procedure. This post was supposed to go live this weekend….. but my bladder has decided with each medical need for Danny it wants a little attention too and I wound up with the start of another infection this weekend. My … More Getting Dan Some Lung Function
Last year at this time I was in a Daring Way Coaching Session with Jeanette Engle . It was one of the best things I have ever done and if you are local I would really recommend you check it out. One of the phrases we used a lot was that life is “brutaful”- brutal and … More Life is Brutaful
Happy Friday friends!! Today in lieu of Friday Favorites I have an extra exciting treat… I am on Ashley’s Roses vlog! This sweet CFer has an interview series to help showcase different people from the CF community and I was blessed enough to be invited to speak on being a CF spouse! It is … More Ashley’s Roses Vlog!
Hey friends! An extra post today from Hopkins of what this season of Hope has brought to our life and how the feelings of gratitude and appreciation for the excuse to take stock has changed everything about this season for us. … More Taking Stock
A little updated of exactly where we are in Danny’s health journey. … More Ummmm Bueller, Bueller – any results to Dan’s procedure??
2018 was the year of intense change. Everything in my world changed, completely out of the unexpected and I learned the true meaning of “what does not kill you makes you stronger”. Today’s post I share with you all some of the truth of this year and what is really on my heart this New Year’s Eve. … More 2018
Merry Christmas Eve all! In so many ways I have thought about the recent holiday season as just a day. Thanksgiving was just a dinner we missed, it helps to make us feel like CF hasn’t stolen something us from us. And truly when you start to look around there are so many people struggling … More What’s Going on Danny Boy?
The CF Community has lost one of its most vibrant members and reminded us of the evils that exist with the disease. Our thanks to Lea’s legacy of hope on the blog and why this loss has been so jarring. … More Rest in Peace Lea Faraone