Wednesday’s at Hopkins

Wednesday’s have now become Danny’s standard check-in days at Hopkins. Each week we go to meet with the transplant team, catch up with necessary specialists, review his medications, and get a report of what to expect at each stage of healing. Following these appointments, I will share an update of Danny’s progress, what we have learned, and any changes on recovery here on the blog. … More Wednesday’s at Hopkins

Finding Our Footing

Tonight I write while sitting next to our beautifully lit Christmas tree…. as of last Thursday evening Danny is HOME!   During my last post I shared with you that Danny would be required to compete full 5 days in the ICU and then move to the step down unit. This is a Hopkins policy … More Finding Our Footing

My Dream

Sunday night I left the hospital after a bit of an  unexpectedly long day. I enjoyed a gloriously long shower, delicious dinner, and funny movie with my mom, until I eventually crawled into the fluffy warm hotel bed and crashed. My mom was still up working a little with the light and it was barely … More My Dream

Hello from the Other Side

Family, friends, readers ….. Danny has new lungs. Hopefully you have been able to follow along on Instagram, Twitter, or Facebook – because since about 1AM on Thursday, December 1 we have been in recovery mode. The days and times are all a blur….. Danny, myself and our parents are living not by calendar dates or by a watch, but milestones and check lists – making the blog suddenly a little quiet. The reality is we are forced into survival mode, yet the part that is so weird is how very different this experience is compared to past hospital stays – there is incredible joy. … More Hello from the Other Side