Life Lately

Hope ya’ll are enjoying an awesome week and experiencing some of the beautiful weather we have here in the Northern VA area! 80s and sunshine…. a taste of summer and I can’t get enough! Despite all the rays I am trying to soak up…. there is blogging to be done, so kicking off this week … More Life Lately

Look Whoos At UVA

When you list for a double lung transplant,you are required to remain within a specific set of miles and hours from the hospital. The lungs can come at any time, from a variety of circumstances and the hospital team, the patient, and the family must be ready to go whenever they get that call- sound … More Look Whoos At UVA

This is My Blog

So many of you have started following our blog as a way to watch as our transplant story unfolds. This has been such a helpful tool to share updates, document our journey, and for me to process my emotions around the experience. Since November 30 our life has been in survivial mode: getting through the surgery, struggling through our growing pains, managing the administrative side (new lungs aren’t free), while reacting to the unexpected. As a result our blog has been a narrative of our story and often where you find us right in this moment. However that is not the sole purpose I write. … More This is My Blog

My Dream

Sunday night I left the hospital after a bit of an  unexpectedly long day. I enjoyed a gloriously long shower, delicious dinner, and funny movie with my mom, until I eventually crawled into the fluffy warm hotel bed and crashed. My mom was still up working a little with the light and it was barely … More My Dream

Hello from the Other Side

Family, friends, readers ….. Danny has new lungs. Hopefully you have been able to follow along on Instagram, Twitter, or Facebook – because since about 1AM on Thursday, December 1 we have been in recovery mode. The days and times are all a blur….. Danny, myself and our parents are living not by calendar dates or by a watch, but milestones and check lists – making the blog suddenly a little quiet. The reality is we are forced into survival mode, yet the part that is so weird is how very different this experience is compared to past hospital stays – there is incredible joy. … More Hello from the Other Side

Happy November!

Hello friends and happy November! My apologies this post is more than a week from our last one, but if you follow us on social media you know we have been a little busy and my hopes of keeping up with blog just weren’t realistic – such is life. So today I have a check-in with whats going on in our world. … More Happy November!