The Call

It was Wednesday November 30 and Danny and I were preparing for our monthly Hopkins check-in. This would be the first appointment we would attend officially listed (Side note: we thought officially listed….since Dan had said he agreed to list Monday, November 28 we were pretty sure he was on there – but no one … More The Call

Danny Health Check-In

We have not had a health check-in for Danny in quite a bit, so after last week’s BIG appointment, it is time…. Danny’s Progress: Danny is officially on the mend. We have talked about the progress he has made and of course been encouraged before…. but nothing like this folks! Danny’s lungs are at 105%, … More Danny Health Check-In

Life Lately

Hope ya’ll are enjoying an awesome week and experiencing some of the beautiful weather we have here in the Northern VA area! 80s and sunshine…. a taste of summer and I can’t get enough! Despite all the rays I am trying to soak up…. there is blogging to be done, so kicking off this week … More Life Lately

Look Whoos At UVA

When you list for a double lung transplant,you are required to remain within a specific set of miles and hours from the hospital. The lungs can come at any time, from a variety of circumstances and the hospital team, the patient, and the family must be ready to go whenever they get that call- sound … More Look Whoos At UVA

This is My Blog

So many of you have started following our blog as a way to watch as our transplant story unfolds. This has been such a helpful tool to share updates, document our journey, and for me to process my emotions around the experience. Since November 30 our life has been in survivial mode: getting through the surgery, struggling through our growing pains, managing the administrative side (new lungs aren’t free), while reacting to the unexpected. As a result our blog has been a narrative of our story and often where you find us right in this moment. However that is not the sole purpose I write. … More This is My Blog

My Dream

Sunday night I left the hospital after a bit of an  unexpectedly long day. I enjoyed a gloriously long shower, delicious dinner, and funny movie with my mom, until I eventually crawled into the fluffy warm hotel bed and crashed. My mom was still up working a little with the light and it was barely … More My Dream

Hello from the Other Side

Family, friends, readers ….. Danny has new lungs. Hopefully you have been able to follow along on Instagram, Twitter, or Facebook – because since about 1AM on Thursday, December 1 we have been in recovery mode. The days and times are all a blur….. Danny, myself and our parents are living not by calendar dates or by a watch, but milestones and check lists – making the blog suddenly a little quiet. The reality is we are forced into survival mode, yet the part that is so weird is how very different this experience is compared to past hospital stays – there is incredible joy. … More Hello from the Other Side