After the recent warm afternoons, long days where you can still walk by the light of the sun after 8pm and when flip flops were part of the regular uniform, we woke up to a rainy and cold Monday. It was like take your breath away sort of cold and the rain was coming down … More Rain Puddles with a Message
Hey friends – happy Tuesday! Today on the blog we are still working our way through our Chicago trip from this fall. It is super behind and it is way behind Post 1 and Post 2. Yup….. I used to blog about what was happening in real time. But in reality that life has sorta … More Chicago Part 3
One of my favorite things about being a blog follower is how the experience goes from just following along to eventually feeling like you are taking advice from a friend. As a result of my love for blogs, I have purchased clothes, tried hair styles, decorated mantles, read books, organized my office, discovered health tricks, and … More These Are A Few of My Favorite Things – Turbie Twists
Monday evening I sat down to write this update and it just wouldn’t come. It’s not uncommon when you like to write to have a little block, but usually if I just keep writing it will eventually un-block. That didn’t happen – it was a simple message… tell the health update, but instead I just … More Danny Health Update – A Path Forward!
It was one of our previous Saturdays spent in the walls of Hopkins. I placed my fork down and put my napkin in my lap as I leaned back in the hospital recliner and away from our current dining room table -Danny’s hospital room tray. Letting out a big sigh and a “that was great”, … More Living in Abundance
As you all know Bishop O’Connell High School LINK holds a very special place in our hearts. The reasons vary and are many: what we experienced there, the friends we made there, the mentors we found there, the faith foundation we built there, the lessons we learned there, the quality students it develops there… we … More SUPERDANCE 2019
The biggest worry I have heard from the Cystic Fibrosis Community around the movie Five Fee Apart is a misrepresentation of CF life. If we are all being honest, there is no way one movie can portray all the different versions or complexities of this serious illness. That was always Danny and I’s perspective: just … More Five Feet Apart – The Movie
Happy Wednesday friends! Over here in our kneck of the woods things are a little all over the place and if I am being honest limbo stages like this can make my a-type feel a little unhinged. But this season of limbo is necessary to help move us into the future…. So instead of constantly … More Progress Over Perfection
“For you are dust and to dust you shall return” these are the words uttered to each person of the congregation as they receive their ashes upon their fore heads. A visible sign that we are broken humans who rely on God’s grace to make us whole. Over the last month I read Lysa … More Lent 2019
Yesterday I had the opportunity to speak at VCU’s CF Family Education Day and it was kind of a crazy experience for Danny and I. In the fall I was asked about doing this event. March seemed so far away but for the first time in our lives we were actually making long term plans … More CF Life & We are Back….. Sigh
Have A Little Faith in We 