Good evening friends! Today’s health report for Danny is pretty straightforward – we have 1/4 of the blockage that still remains. This portion is located in the smaller intestine and will require the yummy cocktail (yea, right – not even close) of Go-Lightly to remove it. The original plan was to have Danny drink that … More Hopkins Remix – Day 4
Thank you to everyone for the continued positive thoughts, kind messages, and appreciated prayers! They are working as today Danny and the blockage turned a corner. After several hours of good sleep (Dan was sawing some serious logs) and various med efforts, the blockage has started to dissipate. It can be a slow moving process, … More Hopkins Remix – Day 3
Thank you all for the continued prayers and thoughts as we work our way through a very odd visit. Sunday night we checked Danny in at Hopkins for a few days of meds planned to help with some of the lung damage they found on Thursday’s bronchoscope. There were a few questions and some … More Hopkins Remix – Day 2
Danny is currently in Hopkins with a few complications related to his double lung transplant surgery. Here is summary of updates from the first day. … More Hopkins Remix – Day 1
Happy New Year! It is official – we have closed the book on 2016 and are just starting to write the story of 2017. Now is the time to start hoping, dreaming, and figuring out what you want this year to be… As ya’ll know, I LOVE a fresh start. A crisp new calendar, a … More Happy New Year 2017!
Wednesday’s have now become Danny’s standard check-in days at Hopkins. Each week we go to meet with the transplant team, catch up with necessary specialists, review his medications, and get a report of what to expect at each stage of healing. Following these appointments, I will share an update of Danny’s progress, what we have learned, and any changes on recovery here on the blog. … More Wednesday’s at Hopkins
Merry Christmas! … More Christmas 2016
Tonight I write while sitting next to our beautifully lit Christmas tree…. as of last Thursday evening Danny is HOME! During my last post I shared with you that Danny would be required to compete full 5 days in the ICU and then move to the step down unit. This is a Hopkins policy … More Finding Our Footing
Sunday night I left the hospital after a bit of an unexpectedly long day. I enjoyed a gloriously long shower, delicious dinner, and funny movie with my mom, until I eventually crawled into the fluffy warm hotel bed and crashed. My mom was still up working a little with the light and it was barely … More My Dream
Family, friends, readers ….. Danny has new lungs. Hopefully you have been able to follow along on Instagram, Twitter, or Facebook – because since about 1AM on Thursday, December 1 we have been in recovery mode. The days and times are all a blur….. Danny, myself and our parents are living not by calendar dates or by a watch, but milestones and check lists – making the blog suddenly a little quiet. The reality is we are forced into survival mode, yet the part that is so weird is how very different this experience is compared to past hospital stays – there is incredible joy. … More Hello from the Other Side
Have A Little Faith in We 