I think I was naive. I was naive to think that at 60 days we should be good to roll. Now not dumb enough to think that we could be completely ready to go or Danny would be ready for a marathon – but if I am being honest, I was confident enough to think we … More Hope as Wings
So many of you have started following our blog as a way to watch as our transplant story unfolds. This has been such a helpful tool to share updates, document our journey, and for me to process my emotions around the experience. Since November 30 our life has been in survivial mode: getting through the surgery, struggling through our growing pains, managing the administrative side (new lungs aren’t free), while reacting to the unexpected. As a result our blog has been a narrative of our story and often where you find us right in this moment. However that is not the sole purpose I write. … More This is My Blog
Hey there all! Hopefully you saw the good news on social media yesterday…. the blockage is out. Throughout Friday night it seems the Go Lightly did its thing and in the morning Danny requested another X-ray to see the status = all clear! So Saturday was spent letting the Go Lightly wrap up its handy … More Hopkins Remix – Day 6
Good evening friends! Today’s health report for Danny is pretty straightforward – we have 1/4 of the blockage that still remains. This portion is located in the smaller intestine and will require the yummy cocktail (yea, right – not even close) of Go-Lightly to remove it. The original plan was to have Danny drink that … More Hopkins Remix – Day 4
Thank you to everyone for the continued positive thoughts, kind messages, and appreciated prayers! They are working as today Danny and the blockage turned a corner. After several hours of good sleep (Dan was sawing some serious logs) and various med efforts, the blockage has started to dissipate. It can be a slow moving process, … More Hopkins Remix – Day 3
Happy New Year! It is official – we have closed the book on 2016 and are just starting to write the story of 2017. Now is the time to start hoping, dreaming, and figuring out what you want this year to be… As ya’ll know, I LOVE a fresh start. A crisp new calendar, a … More Happy New Year 2017!
Wednesday’s have now become Danny’s standard check-in days at Hopkins. Each week we go to meet with the transplant team, catch up with necessary specialists, review his medications, and get a report of what to expect at each stage of healing. Following these appointments, I will share an update of Danny’s progress, what we have learned, and any changes on recovery here on the blog. … More Wednesday’s at Hopkins
My birthday message for my mom this year…. and the gift she has given me to navigate this period of time. … More Happy Birthday to My Mom!
Merry Christmas! … More Christmas 2016
Family, friends, readers ….. Danny has new lungs. Hopefully you have been able to follow along on Instagram, Twitter, or Facebook – because since about 1AM on Thursday, December 1 we have been in recovery mode. The days and times are all a blur….. Danny, myself and our parents are living not by calendar dates or by a watch, but milestones and check lists – making the blog suddenly a little quiet. The reality is we are forced into survival mode, yet the part that is so weird is how very different this experience is compared to past hospital stays – there is incredible joy. … More Hello from the Other Side
Have A Little Faith in We 