Tag: Faith

This is My Blog

January 24, 2017

So many of you have started following our blog as a way to watch as our transplant story unfolds. This has been such a helpful tool to share updates, document our journey, and for me to process my emotions around the experience. Since November 30 our life has been in survivial mode: getting through the surgery, struggling through our growing pains, managing the administrative side (new lungs aren’t free), while reacting to the unexpected. As a result our blog has been a narrative of our story and often where you find us right in this moment. However that is not the sole purpose I write. … More This is My Blog

Wednesday’s at Hopkins

December 30, 2016

Wednesday’s have now become Danny’s standard check-in days at Hopkins. Each week we go to meet with the transplant team, catch up with necessary specialists, review his medications, and get a report of what to expect at each stage of healing. Following these appointments, I will share an update of Danny’s progress, what we have learned, and any changes on recovery here on the blog. … More Wednesday’s at Hopkins

Hello from the Other Side

December 4, 2016

Family, friends, readers ….. Danny has new lungs. Hopefully you have been able to follow along on Instagram, Twitter, or Facebook – because since about 1AM on Thursday, December 1 we have been in recovery mode. The days and times are all a blur….. Danny, myself and our parents are living not by calendar dates or by a watch, but milestones and check lists – making the blog suddenly a little quiet. The reality is we are forced into survival mode, yet the part that is so weird is how very different this experience is compared to past hospital stays – there is incredible joy. … More Hello from the Other Side