And today the fog lifted and I recognized the truth: I am in pain and grief and struggle because right now it looks like all we have is what we had and there won’t be anymore new. Since our ICU experience my body has felt as if it is being chased by a saber tooth … More July 17, 2025
Tuesday June 10 Danny woke up in ICU when he had gone to sleep in his regular hospital room. The conversation moved fast and the need for “decisions to be made” being repeated often. A bad infection had take hold and based on the lack of response to antibiotics in recent treatments, the medical team … More The Gift of Time
July 17, 2010 our wedding day with the colors so carefully selected: black and white with touches of red. And at 14 years that has turned out to be just right. Black: Cystic Fibrosis, Advanced Lung Disease, Pain Medication Dependency, Career Balancing, Infertility, Family Relations, Denied for Adoption, Transplant Rejection, Financial Challenges from Medical Complications… … More Black & White with Touches of Red Over 14 Years
Two things can be true at the same time. A life lesson we all seem to learn at some point or maybe you are more like me and need to learn it over and over again? Over the last 4 years it has been a truth that has followed me a lot. In fact I … More Two Truths Can Exist at the Same Time
Good or bad…. Good or bad…. This is the filter through which I viewed my world. From the big things: was that reaction to my daughter or compromised husband – good or bad? To the little details of the day: extra cup of coffee- good or bad? When I say everything, I mean everything. Towards … More 2024: Gentle
I snapped the below picture last week on a walk. It was so pretty and also reminded me all the different seasons I walked this neighborhood path. This view has been seen in spring, summer, fall and winter… and also with a newborn, with my parents, with my sister and her little baby (who is … More #BessetteDaily
Dear Danny, 13 years ago on this date we said “I do” and I can say with absolute certainty I didn’t picture celebrating this date in the future in the way life has gone at all. But the truth is, it is what Cystic Fibrosis does. A CF veteran mom told me once “they just … More July 17, 2023: 13 Years
Happy July friends! How are you doing?? Are you enjoying summer? It is hot as all get out… it’s going so fast… a variety of factors that can be more negative about this season are present daily and yet I can’t hide my smile. I love summer! Virginia we have all the seasons and you … More Thy Will ~ Half Way on 2022
“If you want something to be different than it ever has been before….. you have to do something different than you have ever done before.” “The things you have now are the things you had at one point prayed for…..” Or something like that…. These two quotes crossed my path a few Mondays age and … More Gotta Look At It Different
We are moving and facing a lot of truth …. Today processing a little of that on the blog. … More The Day I Stopped Swimming
Have A Little Faith in We 