Come A Long Way
May 17, 2017
Yesterday evening we drove up to Hopkins for a Wednesday full of appointments and it hit me…. we have made it to a new season. Heck – we have actually made it through a lot. … More Come A Long Way
Tag: Cystic Fibrosis
Double Lung Transplant Listing
April 26, 2017
Making the decision to list and then actually taking the plunge is a huge part of our journey. We have been talking about it since our first fall married in 2010 and it took until the fall of 2017 to make the final decision. Here I will share what our journey was like, what decisions we had to make, and what comes with listing. … More Double Lung Transplant Listing
Yea, Yea What About Those Lungs?
April 23, 2017
After a little break of talking about post-transplant life on the blog, I have emerged from under the surf. We are blessed with how so much of this process has gone – yet the tough stuff is just tough and I required a break from sharing. After some time and healing, I have realized that reflecting back shows what God has made possible during this experience. Taking the opportunity to share those moments will provide reasons to be grateful and hope to believe in as we move forward. So back we will go, starting with this post. … More Yea, Yea What About Those Lungs?
Breath of Life Gala 2016
March 10, 2017
As I continue to get back to documenting our life prior to our little pause ….following our UVA trip we attended the 2016 Cystic Fibrosis Foundation Breath of Life Gala. Each year the foundation hosts events all over the country to raise funds and awareness for CF. Over the years both Danny and I have … More Breath of Life Gala 2016
Wednesday’s at Hopkins
March 7, 2017
Wednesday’s have now become Danny’s standard check-in days at Hopkins. Each week (we have since graduated to every other week….and now every third week) we go to meet with the transplant team, catch up with necessary specialists, review his medications, and get a report of what to expect at each stage of healing. Following these … More Wednesday’s at Hopkins
SUPERDANCE Kick-Off 2017
February 27, 2017
On Friday Bishop O’Connell High School kicked of SUPERDANCE 2017 with the assembly. Unfortunately Danny and I were not able to attend – Dan still recovering from the hospital and I needed to be at the office. So instead of Dan’s normal speech, we submitted a letter. Just in case you are still a little … More SUPERDANCE Kick-Off 2017
Weekend – That’s A Wrap!
February 22, 2017
Hello friends and happy Wednesday! Hope you are enjoying a great week and maybe if you are local really soaking up this peek at spring….temperatures in the 60s and 70s – it is amazing! Luckily the Bessette family is all on the mends so we can enjoy it too! This past Friday Quinlan and … More Weekend – That’s A Wrap!
I was Chosen
February 20, 2017
Over the last few posts I have shared the raw and emotional side of this journey for me as the wife and us as a couple. This moment in time is very fragile, full, and overwhelming, but it is not the whole story. I have acknowledged the many silver linings with the strengthening of faith … More I was Chosen
Current State of Things
February 16, 2017
Currently Danny is in patient at Johns Hopkins. The first thing to know is that Danny is at the hospital, but not for any of the major things. His lungs, temperature, blood pressure, and other body systems (often with transplant other issues come up like kidneys or as you may recall tummy) are all doing … More Current State of Things
Shells of Ourselves
February 7, 2017
It is interesting the different stories and anecdotes that have crossed my path during this journey. I have run into people from various walks of my life at odd times… I have witnessed truths that are both painful and wonderful, it can only mean that you must truly be alive to feel that kind of … More Shells of Ourselves
Have A Little Faith in We 