Happy Tuesday friends! Is everyone enjoying the sum sum summertime?? We are LOVING it – especially since it feels a little cooler than normal for Northern VA in June, like an extedned spring…ahhhh PERFECTION! Today I am sharing a little life lately and how we are soaking up the season. We really started thinking about … More Life Lately
We have not had a health check-in for Danny in quite a bit, so after last week’s BIG appointment, it is time…. Danny’s Progress: Danny is officially on the mend. We have talked about the progress he has made and of course been encouraged before…. but nothing like this folks! Danny’s lungs are at 105%, … More Danny Health Check-In
On Monday November 28, 2016 Danny listed for a double lung transplant with Johns Hopkins Pulmonary Program. In many ways it felt like this was the beginning of the journey, but the reality was we had already been walking for awhile. Transplant first officially came up as an option that Danny would be preparing for in January 2010, … More Listing Day
My birthday message for my mom this year…. and the gift she has given me to navigate this period of time. … More Happy Birthday to My Mom!
My wishes for Danny on his 32nd birthday! … More Here’s to You Danny
A look back at how we get started and how after 11 years the fun has still not run out! … More 11 Years and the Fun Still Hasn’t Run Out
As you saw this past weekend we kicked off wedding season and for 2016 it is just the beginning! By the time summer is over we will have been to 4 more ceremonies. So as I looked at the calendar a few weeks back I thought how fun it would be to do a post … More Wedding Season: Marriage
Last month we talked a lot about SUPERDANCE and it got me thinking about the serendipitous power of life. At this year’s assembly as I sat amongst the audience hearing the words people would speak, feeling their personal experience, and learning what CF has represented in their lives – the many moments that have led to … More Serendipity of Life
Summertime is so full of magic. As a kid the freedom of no school, long sunny days, family time from evenings at the pool to beach vacations – so many moments of summer are frozen in time in the minds of those who take advantage. Then we grow and summer is full of adventures with … More Summer 2015
Have A Little Faith in We 