Hi guys! Happy Sunday. Popping on to give a little status update and since it is late and the outline format helped me be clear during the last post – I am going for it again. Reminder of the ultimate goal: If you looked at our post from in the hospital you can read … More The Plan….. for Now
Hi friends – hopping on here to give a little update of what is happening in our world…. if you follow us on social media then you know our Thanksgiving plans of celebrating the holiday with the Bessette side of the family and then heading Friday first thing to Pittsburg for a hockey tournament with … More Hopkins Happenings
In 2016 and 2017 therapy became a full time hobby. When I wasn’t doing the things I needed to keep the life we had cobbled together on life support (trying to maintain my job, work a second job, conducting creative accounting between incomes and our charity fund, trying to understand our reality so we could … More Supposed & Should are the other S Words
So I have had this post ready to go for a week. I was dragging my feet about posting it …. I think because I wanted to be able to report that everything had turned around. This was just a visit into bad memories and we were back on the up and up. Sadly that … More Can you reject just a little bit?
As pre-op wrapped up, it was time for the moment I had been wondering about since we even breathed the word transplant: our pre-surgery goodbye. First Danny’s parents had their time. I stood out in the hall trying to remain calm and talk to my parents. Keyword would be trying as I wavered between emotional … More Unexpected Goodbye
Its not always life versus death. Sure there are moments that are fueled by the reality that life is so very short and that death has never been that far off base in our world. But it is more often the feeling that life as it is now or even just regular life never felt … More Indianapolis Summer Visit
Hey guys, today I am returning to a moment of our transplant journey: the pre-op room. After the call from the OR team wondering where the heck we were, Danny and I raced through the parking deck to our car. At the time I was attempting to give directions to his parents, since they happened … More Transplant Pre-Op Room
It is human nature to wonder if you will live your life to the fullest. Do we choose the right passions? Surround ourselves with the right people? Select the correct career? Spend our most valuable resources: time, money and energy on the right things? Will we leave the world better than we found it? Claire … More Rest in Peace Claire Wineland
On August 15 we had the privilege of participating in the CF Mini-Con for Transplant. It was a virtual event that allowed CF patients and their families and/or support team to learn more about the different stages of transplant through the eyes of those who have experienced it. The reason this event felt so unique … More 2018 CF MiniCon: Transplant Follow-Up
This weekend we were invited to share our story at the Children Organ Transplant Association (COTA) Miracle Maker Event. COTA is the the not for profit organization we worked with for Danny’s transplant fund. They are amazing and will be getting their own post, but the most important thing to know is they have changed … More CF Does Define Us & We Are Blessed
